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Pennsylvania Rare Disease Day 2018

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Date/Time
June 19, 2018
10:00 am - 1:00 pm

Location
Pennsylvania State Capitol

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Pennsylvania Rare Disease Day Advocacy Event

June 19, 2018 at 10:00am

Pennsylvania State Capitol, 501 North 3rd Street, Harrisburg, PA 17120

The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot be ignored.¬† This is an opportunity for patients, caregivers, medical professionals and industry representatives to come together and educate elected officials about rare diseases and what it’s like to live with or care for someone with a rare disease in the state.

Online Registration has closed. If you’d like to register please contact your Pennsylvania State Ambassador, Kristin Smedley at kristin.smedley@rareaction.org

 

 

 

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