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New York Rare Disease Day 2018

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March 27, 2018
10:00 am - 2:00 pm

New York State Capitol


New York Rare Disease Day Advocacy Event

March 27, 2018 at 10:00am

New York State Capitol, State Street and Washington Avenue, Albany, New York 12224

The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot be ignored.  This is an opportunity for patients, caregivers, medical professionals and industry representatives to come together and educate elected officials about rare diseases and what it’s like to live with or care for someone with a rare disease in the state. Register today!

New York RDD Registration 2018

RDD Sign Up Form
  • By selecting yes you will be automatically signed up as a member of the Rare Action Network℠ and become a part of a 30+ million person community working towards improving the lives of patients with rare diseases. You will begin to receive regular communications from the Rare Action Network℠ team. To learn more visit:
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