New Hampshire Rare Action Network Advocacy Workshop
October 05, 2018
9:00 am - 3:00 pm
The Centennial Inn
The National Organization for Rare Disorders invites all rare disease advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current legislative actions. In addition, this workshop will feature an opportunity to speak directly with members of Congress from New Hampshire about the Orphan Drug Act.
The Centennial Hotel from 9:00am to 3:00 pm on Friday, October 5, 2018, in Concord, New Hampshire. This is a free meeting that will give attendees the opportunity to connect, learn, and share with other patient organization leaders and advocates. This event is hosted at no cost to participants. Light breakfast and lunch will be provided.
TO REGISTER TODAY!