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Rare Action Network > Events > All Events > Jordyn’s 5k Fun Run
Jordyn’s 5k Fun Run
Date/Time
June 09, 2018
All Day
Location
Jackson Civic Center
Categories
Jordyn’s 5k Fun Run
Saturday, Jun 9, 2018, 7:00 am
Jackson Civic Center
Registration fee by May 19th (includes shirt): $25
Registration fee after May 19th (doesn’t include shirt): $30
Kids 12 and under free (not eligible for prizes)
Race day registration is from 7:15-7:45 a.m.
5k race begins at 8 a.m.
Prizes will be awarded for 1st-3rd place in 3 age divisions (male & female).
Register online or by mail.
https://www.eventbrite.com/e/jordyns-5k-fun-run-2018-tickets-35514571038?ref=eio…
Send registration form and payment by mail to: Randy or Amber Conn, 219 Florence St., Jackson, MO 63755
Jordyn is a spunky, sassy, and energetic three year old girl diagnosed with Alexander disease, a terminal leukodystrophy. This disease affects children differently, and for Jordyn it causes seizures, makes walking and talking difficult, and causes sensory issues that make being around large groups for long periods of time impossible.
Jordyn sees many doctors and therapists to combat the regression this disease causes, and so far she has continued to take steps forward. Proceeds from this race will go to helping pay for the physical, speech, and occupational therapies that are currently the only things that can be done to help combat this disease, funding a once a year trip to Philadelphia to be part of a research study on Alexander disease, and Elise’s Corner, a foundation that has donated more than $150,000 to Alexander disease research.
Sponsorship will be as follows:
Gold: $150 – 4″ logo on back of shirt
Silver: $100 – 3″ logo on back of shirt
Bronze: $50 – Business listed on back of shirt