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Events By State

Find an in-person or state-wide event in your state here! You can also view all upcoming events which include virtual and nation-wide action opportunities.

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California

California Rare Action Network Advocacy Workshop Luncheon

Hyatt Regency Orange County
11999 Harbor Boulevard
Garden Grove, California

September 11, 2018 9:00 am - 1:00 pm

The National Organization for Rare Disorders invites all advocates to attend and participate in the California Rare Action Network Advocacy Workshop being held on Tuesday, September 11, 2018, in Anaheim, CA. This is a free meeting that will give attendees [...]

Colorado

Connecticut

CT

Florida

Georgia

Hawaii

Illinois

Indiana

Indiana Rare Action Network Patient Advocacy & Orphan Drug Workshop

Renaissance Indianapolis North Hotel
11925 Meriden Street
Carmel, Indiana

August 17, 2018 9:00 am - 3:00 pm

Friday, August 17, 2018 from 9am-1pm in Carmel, IN please join NORD's Rare Action Network for a patient advocacy and orphan drug workshop. This will be an opportunity to learn about rare disease patient advocacy and connect with NORD about current [...]

Iowa

Kentucky

MA

2nd World Congress - Lessons Learned from Rare Disease and Personalized Medicine Approaches

Royal Sonesta
40 Edwin Land Boulevard
Cambridge, MA

September 17, 2018 - September 18, 2018 8:30 am - 5:00 pm

Cambridge, MA. The conference agenda is a mix of presentations, panel discussions and short technology demonstrations that will cover a wide range of strategies for successful drug discovery. While the focus of the conference is rare diseases and personalized medicine across various [...]

Maine

Massachusetts

Michigan

Minnesota

Mississippi

MO

Nebraska

New Hampshire

New Hampshire Rare Action Network Advocacy Workshop

O Steaks & Seafood
11 S Main Street
Concord, New Hampshire

October 05, 2018 10:00 am - 3:00 pm

The National Organization for Rare Disorders invites all advocates to attend and participate in the Rare Action Network Advocacy Workshop Luncheon at O Steaks & Seafood from 11:00am to 3:00 pm on Friday, October 5, 2018, in Concord, New Hampshire. This is a [...]

New Jersey

Ohio

2018 Northeast Ohio Walk n' Roll to Cure Ataxia

Lakewood Park
14532 Lake Ave
Lakewood, Ohio

August 26, 2018 10:00 am - 2:00 pm

Participants will walk or roll around Lakewood Park to raise Ataxia awareness, and take part in raffles with cash prizes and donations from the Great Lakes Science Center, the Cleveland Browns, the Cleveland Zoo, the Cleveland Cavaliers and others. The [...]

Oklahoma

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Texas

Utah

Washington

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