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Events By State

Find an in-person or state-wide event in your state here! You can also view all upcoming events which include virtual and nation-wide action opportunities.

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Alabama

Alabama Rare Disease Day 2018

Alabama State House
11 S Union Street
Montgomery, Alabama

March 06, 2018 - March 07, 2018 All Day

Alabama Rare Disease Day 2-Day Advocacy Event Advocacy Training Day  Tuesday March 6, 2017   Alabama State House – Rm. 200, 11 S Union St, Montgomery, AL 36130 12:30 pm - 5 pm Rare Disease Day  Wednesday March 7, 2017  Alabama State House [...]

Arizona

Arizona Rare Disease Day 2018

Arizona State Capitol
1700 W Washington
Phoenix, Arizona

February 28, 2018 11:00 am - 1:00 pm

Arizona Rare Disease Day Advocacy Event February 28, 2018 at 11:00am Arizona State Capitol, 1700 W Washington, Phoenix, Arizona 85007 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot be [...]

Arkansas

Arkansas Rare Disease Day 2018

Arkansas State Capitol
500 Woodlane Street
Little Rock, Arkansas

March 07, 2018 2:00 pm - 4:00 pm

Arkansas Rare Disease Day Advocacy Event March 7, 2018 at 2:00pm Arkansas State Capitol, 500 Woodlane Street, Little Rock, Arkansas 72201 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot be [...]

California

California Rare Disease Day 2018

California State Capitol
1315 10th Street
Sacramento, California

February 28, 2018 10:00 am - 3:00 pm

California Rare Disease Day Advocacy Event February 28, 2018 at 10:00am California State Capitol, Capitol Steps, 1315 10th St, Sacramento, CA 95814 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that [...]

Colorado

Colorado Rare Disease Day 2018

Colorado State Capitol
200 E Colfax Avenue
Denver, Colorado

February 28, 2018 8:00 am - 9:00 am

Colorado Rare Disease Day Advocacy Event February 28, 2018 at 8:00am Colorado State Capitol, 200 East Colfax Avenue, Denver, CO 80203 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that [...]

Connecticut

Connecticut Rare Disease Day 2018

Legislative Office Building
300 Capitol Avenue
Hartford, Connecticut

February 28, 2018 8:30 am - 11:00 am

Connecticut Rare Disease Day Advocacy Event February 28, 2018 at 8:30 am Legislative Office Building, 300 Capitol Avenue, Hartford, CT 06106 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot [...]

Florida

Rare Disease Day Event - Orlando

Wellcare
6805 W Colonial Dr,
Orlando, Florida

February 28, 2018 9:00 am - 1:00 pm

Orlando Rare Disease Day event. With Special guest speaker Ann Moser, Kennedy Krieger and spokesperson from the Newborn Screening Office in Tallahassee. https://www.facebook.com/events/1439362119509418/

Rare Disease Day Dance Party @ UF Shands

pin Hide Map Shands at the University of Florida
1600 SW Archer Rd
Gainesville, Florida

February 28, 2018 3:00 pm - 5:00 pm

Dance party to celebrate being rare! Join rare patients, medical students, Dance Marathon, and Florida Rare Action Network for an afternoon of fun. https://www.facebook.com/events/213872365825650/

Georgia

Hawaii

Hawaii Rare Disease Day 2018

Moili'ili Community Center
2535 South King St
Honolulu, Hawaii

March 05, 2018 10:30 am - 1:30 pm

Hawaii Rare Disease Day Advocacy Event March 5, 2018 at 10:30am Moili'ili Community Center in the courtyard, 2535 South King St, Honolulu, HI 96826 The goal of advocacy events is to draw attention to rare diseases as an important public health issue [...]

Illinois

Illinois Rare Disease Day 2018

Illinois State Capitol
401 South Second Street
Springfield, Illinois

February 28, 2018 9:00 am - 2:30 pm

Illinois Rare Disease Day Advocacy Event February 28, 2018 at 9:00am Illinois State Capitol, 401 South Second Street, Springfield, IL 62707 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot [...]

Kentucky

Kentucky Rare Disease Day 2018

Kentucky State Capitol Rotunda
700 Capital Avenue
Frankfort, Kentucky

February 27, 2018 12:00 pm - 4:00 pm

Kentucky Rare Disease Day Advocacy Event February 27, 2018 at 12:00pm Kentucky State Capitol, Rotunda, 700 Capital Avenue, Frankfort, KY 40601 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot [...]

Maine

Maine Rare Disease Day 2018

Welcome Center at Maine State House
210 State Street
Augusta, Maine

February 28, 2018 11:30 am - 12:30 pm

Maine Rare Disease Day Advocacy Event February 28, 2018 at 11:30am Welcome Center at the Maine State House, 210 State Street, Augusta, Maine 04330 The goal of advocacy events is to draw attention to rare diseases as an important public health [...]

Massachusetts

Massachusetts Rare Disease Day 2018

UMass Club, 32nd Floor
1 Beacon Street
Boston, Massachusetts

February 28, 2018 9:00 am - 12:30 pm

Please join Massachusetts Rare Action Network for Rare Disease Day in Boston on Wednesday, February 28, 2018 from 9:00am-12:30pm at the UMass Club at 1 Beacon Street, 32nd floor, Boston MA. This is an opportunity for patients, families, caregivers, medical professionals and industry representatives to come together and educate [...]

Michigan

Michigan Rare Disease Day 2018

Michigan State Capitol, The Speaker's Library
100 North Capitol Avenue
Lansing, Michigan

March 08, 2018 11:00 am - 12:30 pm

Michigan Rare Disease Day Advocacy Event March 8, 2018 at 11:00am Michigan State Capitol, The Speaker’s library, 100 North Capitol Avenue, Lansing, MI 48933 The goal of advocacy events is to draw attention to rare diseases as an important public health [...]

Minnesota

University of Minnesota 2018 Rare Disease Day

Graduate Hotel - Pinnacle Ballroom
615 Washington Avenue SE
Minneapolis, Minnesota

February 23, 2018 11:00 am - 2:30 pm

University of Minnesota 2018 Rare Disease Day Friday, February 23, 2018 11 AM to 2:30 PM Graduate Hotel Pinnacle Ballroom 615 Washington Ave SE | Minneapolis MN 55414 Schedule: 11:00 am - 12:00 pm - Poster Session 12:00 - 1:30 pm - [...]

Minnesota Rare Disease Day 2018

Minnesota State Capitol
75 Reverend Dr. Martin Luther King Jr. Boulevard
Saint Paul, Minnesota

February 28, 2018 10:00 am - 12:00 pm

Minnesota Rare Disease Day Advocacy Event February 28, 2018 at 10:00am Minnesota State Capitol, 75 Reverend Dr. Martin Luther King Jr. Boulevard, Saint Paul, MN 55155 The goal of advocacy events is to draw attention to rare diseases as an important [...]

Mississippi

Mississippi Rare Disease Day 2018

Mississippi State Capitol
400 High Street
Jackson, Mississippi

February 28, 2018 8:00 am - 11:00 am

Mississippi Rare Disease Day Advocacy Event February 28, 2018 at 8:00am Mississippi State Capitol, 400 High Street, Jackson, Mississippi 39201 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot be [...]

Nebraska

Nebraska Rare Disease Day 2018

Nebraska State Capitol, Warner Chamber
1445 K St
Lincoln, Nebraska

March 05, 2018 11:00 am - 12:00 pm

Nebraska Rare Disease Day Proclamation Signing Ceremony March 5, 2018 at 11:00am Nebraska State Capitol, Warner Chamber, 1445 K Street, Lincoln, NE 68508 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that [...]

New Hampshire

Muscle Energy Techniques (MET) for the Pelvis, SIJ and ISJ

Franklin Pierce University Jefferson Mill Building
670 North Commercial Street, Suite 301
Manchester, New Hampshire

April 21, 2018 - April 22, 2018 8:30 am - 5:00 pm

NH EDS Coalition is happy to announce that a two day training has been arranged for physical therapists (OTs, PTAs, OTAs, and LMTs too) in New Hampshire. It is focused on assessment and muscle energy techniques for the pelvis and [...]

New Hampshire Rare Disease Day 2018

New Hampshire State House, State House Dining Hall
107 N Main Street
Concord, New Hampshire

March 07, 2018 11:00 am - 2:00 pm

New Hampshire Rare Disease Day Advocacy Event March 7, 2018 at 11:00am New Hampshire State House, State House Dining Hall, 107 N Main Street, Concord, New Hampshire 03303 The goal of advocacy events is to draw attention to rare diseases as [...]

New Jersey

New Jersey Rare Disease Day

New Jersey Museum
205 West State Street
Trenton, New Jersey

March 05, 2018 8:30 am - 3:30 pm

A Better World for People Living with Rare Diseases: State, National, and Global Action TO REGISTER CLICK HERE Sponsored by, BioNJ, HINJ and NORD Takes place at the New Jersey Museum at 205 West State Street, in Trenton. From 8:30 a.m. [...]

New York

New York Rare Disease Day 2018

New York State Capitol
State Street and Washington Avenue
Albany, New York

March 27, 2018 10:00 am - 2:00 pm

New York Rare Disease Day Advocacy Event March 27, 2018 at 10:00am New York State Capitol, State Street and Washington Avenue, Albany, New York 12224 The goal of advocacy events is to draw attention to rare diseases as an important public [...]

Ohio

Ohio Rare Disease Day 2018

Ohio State Capitol
1 Capitol Square
Columbus, Ohio

February 28, 2018 7:30 am - 3:00 pm

Ohio Rare Disease Day Advocacy Event February 28, 2018 Breakfast at Lexi's on Third 100 East Broad Street(Corner of Third and Broad Street), Columbus, OH 43215 7:30am-9:00am Ohio State Capitol 1 Capitol Square, Columbus, OH 43215 9:30am-3:00pm The goal of advocacy [...]

Oklahoma

Oklahoma Rare Disease Day 2018

Oklahoma State Capitol
2300 North Lincoln Boulevard
Oklahoma City, Oklahoma

April 25, 2018 9:00 am - 1:00 pm

Oklahoma Rare Disease Day Advocacy Event April 25, 2018 at 9:00am Oklahoma State Capitol, 2300 North Lincoln Boulevard, Oklahoma City, Oklahoma 73105 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that [...]

South Carolina

South Carolina Rare Disease Day 2018

South Carolina State Capitol
1100 Gervais St
Columbia, South Carolina

February 28, 2018 9:00 am - 1:00 pm

South Carolina Rare Disease Day Advocacy Event February 28, 2018 at 9:00am South Carolina State Capitol, 1100 Gervais St, Columbia, SC 29201 South Carolina Rare Action Network has partnered with Hemophilia of South Carolina (HSC) Advocacy Days event on Rare [...]

Texas

Texas Rare Disease Day 2018

Law firm of Osha Liang LLP, Two Houston Center
909 Fannin Street, Suite 3500
Houston, Texas

April 19, 2018 11:00 am - 1:00 pm

Texas Rare Disease Day Advocacy Event April 19, 2018 at 11:00am Law firm of Osha Liang LLP, Two Houston Center, 909 Fannin Street, Suite 3500, Houston, Texas 77010 Join us for Texas Rare Action Network’s Rare Disease Day event. There will be [...]

Utah

Utah Rare Disease Day 2018

Utah State Capitol
350 State Street
Salt Lake City, Utah

February 28, 2018 3:00 pm - 5:00 pm

Utah Rare Disease Day Advocacy Event February 28, 2018 at 3:00pm Utah State Capitol, 350 State Street, Salt Lake City, Utah 84111 The goal of advocacy events is to draw attention to rare diseases as an important public health issue that [...]

Washington

Washington Rare Disease Day 2018

Washington State University Spokane Campus
412 E Spokane Falls Blvd
Spokane, Washington

February 28, 2018 12:00 pm - 1:00 pm

Washington Rare Disease Day February 28, 2018 at 12:00pm-1:00pm Washington State University Spokane Campus, SAC 147 Limited tickets available CLICK HERE to register today! Agenda: 12:00pm Mary McDirmid, Washington Rare Action Network State Ambassador, Speaker, Momboss, Rare Patient Advocate 12:15pm [...]

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