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Events By State

Find an in-person or state-wide event in your state here! You can also view all upcoming events which include virtual and nation-wide action opportunities.

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3rd Annual World Congress: Delivering Therapies to the Clinic Faster

Kimpton Marlowe Hotel
25 Edwin H. Land Blvd
Cambridge, Massachusetts

September 23, 2019 - September 24, 2019 8:00 am - 4:00 pm

September 23-24, 2019  Cambridge, MA This year’s conference will highlight novel approaches to drug development that effectively reduce program timelines and accelerate delivery to the clinic. Using a variety of case studies, our speakers will illustrate methods that successfully cut [...]


When My Norm Became Rare Lissencephaly Awareness Luncheon

La Quinta Inn & Suites by Wyndham Hinesville - Fort Stewart
1740 E Oglethorpe Hwy
Hinesville , GA

September 07, 2019 1:00 pm - 4:00 pm

Families with special needs kids are invited to have fun with face painting, free food, and more in support of Lissencephaly Awareness Day For additional Information contact Monique Lovely


Oklahoma Rare Champion Workshop Featuring Representative Markwayne Mullin

Cowboy's Bar-B-Q & Grill
401 N York St
Muskogee, Oklahoma

September 06, 2019 8:00 am - 1:00 pm

Come Meet U.S. Representative Congressman Markwayne Mullin and Learn About the Orphan Drug Act! Friday, September 6, 2019 8:00 a.m. to 1:00 p.m. Cowboy’s Bar-B-Q & Grill, 401 N York Street, Muskogee, Oklahoma. Please join NORD and Oklahoma Rare Action [...]


Selections from DISORDER: The Rare Disease Film Festival at Biotech Week Boston

Takeda Auditorium
35 Landsdowne Street
Cambridge, Massachusetts

September 12, 2019 All Day

A series of screenings from DISORDER: The Rare Disease Film Festival will be shown as part of Biotech Week Boston. The screenings aim to build connections between the biopharma community, patient advocacy groups, patients, and those who are passionate about finding [...]

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