Donate Now

Join RAN

Events By State

Find an in-person or state-wide event in your state here! You can also view all upcoming events which include virtual and nation-wide action opportunities.

Loading Map....

Filter by State

Massachusetts

Oregon

Kentucky

CT

Massachusetts

Pennsylvania

Oklahoma

Mississippi

Texas

Washington

Connecticut

Georgia

Arkansas

Illinois

Kentucky

Maryland

Michigan

New Hampshire

Minnesota

New Jersey

Ohio

Oregon

Pennsylvania

Pennsylvania Rare Disease Day 2019

Pennsylvania State Capitol
501 N 3rd St
Harrisburg, Pennsylvania

May 07, 2019 10:00 am - 2:00 pm

*NOTE: This event is in Spring 2019* Please join Pennsylvania Rare Action Network for Rare Disease Day Advocacy Event Tuesday, May 7, 2019 10:00am at the Pennsylvania State Capitol, 501 N 3rd St, Harrisburg, PA 17120. Patients, families, caregivers, medical professionals and [...]

Wisconsin

California

North Carolina

Missouri

Florida

California

Louisiana

Louisiana Rare Disease Day 2019

Louisiana State Capitol, Rotunda
900 North 3rd Street
Baton Rouge, Louisiana

April 08, 2019 10:00 am - 2:00 pm

Please join Louisiana Rare Action Network for Rare Disease Day Advocacy Event on APRIL 8, 2019 from 10:00am-2:00pm at the Louisiana State Capitol, Rotunda, 900 North 3rd Street, Baton Rouge, LA 70821. Patients, families, caregivers, medical professionals and industry representatives are invited to attend [...]

New Hampshire

Hoofbeats 5k

NHTI, Concord's Community College
31 College Dr
Concord, New Hampshire

June 01, 2019 9:00 am - 11:00 am

Join us for New Hampshire Rare Disorders Association's 3rd Annual Hoofbeats 5K to raise awareness of rare disorders! Satruday, June 1, 2019 from 9:00am-11:00am NHTI, Concord's Community College, 31 College Dr., Concord, NH 03301 This is a fun family event [...]

Arizona

Missouri

Ohio

Ohio Patient Advocacy & Orphan Drug Workshop

The Westin
21 E. 5th Street
Cincinnati , Ohio

April 13, 2019 8:30 am - 3:00 pm

PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP Saturday, April 13, 2019 from 8:30am to 3:00pm, Cincinnati, Ohio. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity to [...]

Oregon

Oregon Patient Advocacy & Orphan Drug Workshop

World Trade Conference Center
121 SW Salmon Street
Portland, Oregon

April 05, 2019 8:30 am - 3:00 pm

PATIENT ADVOCACY & ORPHAN DRUG WORKSHOP Friday, April 5, 2019 from 8:30am to 3:00pm in Portland, Oregon. The National Organization for Rare Disorders invites all advocates to attend and participate in the patient advocacy and orphan drug workshop. This will be an opportunity [...]

Alabama

Florida

North Carolina

Tennessee

Tennessee Rare Action Network Movie Night!

The Belcourt Theatre
2102 Belcourt Ave
Nashville, Tennessee

April 09, 2019 7:00 pm - 9:30 pm

In Tennessee, we are going to hold our Rare Disease Awareness activity on Tuesday, April 9th, at 7pm. We have a movie showing at the Belcourt Theatre! This is an awareness event, not a fundraiser! So, bring one and all, [...]

Wisconsin

Wisconsin Rare Disease Day Advocacy Event 2019

Wisconsin State Capitol, Assembly Parlor West
2 E Main St
Madison, Wisconsin

April 23, 2019 11:00 am - 4:30 pm

Please join Wisconsin Rare Action Network for Rare Disease Day Advocacy Event on Tuesday, April 23, 2019 at 11:00am -4:30pm, Wisconsin State Capitol, Assembly Parlor West, 2 E Main St, Madison, WI 53703 Greenfield, WI 53221. Patients, families, caregivers, medical professionals and industry representatives [...]

Program Sponsors

CSL Behring Logo

Corporate Partners stand behind taking rare action with NORD. Become a Corporate Partner Today!
View All Sponsors

NORD Links

NORD Logo

Rare Disease Day Logo

Running4Rare Logo