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Find an in-person or state-wide event in your state here! You can also view all upcoming events which include virtual and nation-wide action opportunities.

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Improving Healthcare Experiences in the Rare Disease Community

Cambrooke Therapeutics
4 Copeland Drive
Ayer, Massachusetts

November 10, 2018 8:00 am - 5:30 pm

Rare New England is hosting a conference to bring education and information to rare disease stakeholders. Topics included will be clinical trials, advocating for your child, what to expect in genetic testing, an overview of the ketogenic diet and more! [...]

Massachusetts Rare Action Network Meeting

The Commonwealth Salon, McKim Building, Boston Public Library
230 Dartmouth Street
Boston, Massachusetts

November 06, 2018 6:00 pm - 8:00 pm

Please join the Massachusetts Rare Action Network Tuesday, November 6th from 6pm-8pm Boston Public Library The Commonwealth Salon, McKim Building 230 Dartmouth Street, Boston, MA 02116 We will describe the rare disease environment in Massachusetts and the rest of the [...]

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