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Days of Action: Video Messages

 

Rare Disease families have launched a video campaign telling Senators to protect Medicaid and pre-existing conditions. Join us and send a video message to your Senators! Tell Senators through video how the BCRA will impact your life, or the life of a love one. Take a short, 30-second video, save it on your device, upload it to social media, and tag your Senators. This is an easy and impactful way to show your Senators who you are and how the BCRA will affect you.

Video Instructions

In order to create a video message to send to your Senators, follow these simple instructions below.

  1. Record a video of yourself on your preferred device (someone can tape you or you can record the video “selfie-style”) using either of the scripts below.
  2. Save the video onto your device
  3. Upload the video to social media
  4. Before publishing, write out a caption or tweet to coincide with your video. In your caption or tweet, be sure to include the following:
    • **TAG YOUR SENATORS** This is the only way to ensure that your Senators will see the video!!
    • Include #ProtectPatientsNow

Focus on Pre-Existing Conditions

Hi, this message is for [Name Senators].

My name is [Your Name] and I live in [Your Hometown and State].

I have a rare disease called [Enter Name of Your Condition]. I have a pre-existing condition and [briefly explain how the proposed bill will impact your life].

I urge you both to vote NO to the BCRA.

It not only affects me, but it affects 30 million other Americans who live with a rare disease like I do.

Thank you for your support.

Focus on Medicaid

 Hi, this message is for [Name Senators].

My name is [Your Name] and I live in [Your Hometown and State].

I have a rare disease called [Enter Name of Your Condition], and I rely on Medicaid for [briefly explain your experiences with Medicaid and how the proposed cuts to Medicaid will impact your life].

I urge you both to vote NO on the BCRA.

It not only affects me, but it affects 30 million other Americans who live with a rare disease like I do.

Thank you for your support.

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