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RareAction Network > About > News > 2016
Archives for: 2016
NORD Issues Statement as Senate Postpones Vote on Cures Legislation
July 14, 2016
The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), as the Senate announced it would not vote on its […]
July 13 Day of Action: Last Chance for Zika Funding
July 13, 2016
Time is running out – today may be our last chance before September for anything to happen on the critical Zika package. This Friday, Senators will depart D.C. for their 7-week […]
Register: Rally for Medical Research Hill Day 2016, Sept. 21-22
June 29, 2016
Save the date for Sept. 21-22 for a nationwide day of action! Join NORD and 300+ partner organizations as we ‘rally’ for medical research as part of the annual Rally […]
June 22, 2016
NORD has recently become a member of a coalition of patient groups in Oregon seeking to reduce out-of-pocket drug costs for patients. The Oregon legislature recently created a Prescription Drug […]
June 16, 2016
NORD, the leading, independent advocacy organization committed to helping the 1 in 10 Americans with rare diseases, applauds the Senate for authorizing medical foods coverage in the National Defense Authorization […]
Today, Tell Congress We Need #CuresNow
June 7, 2016
Today, June 7, join rare disease advocates around the country and tell your Senators to support the Senate Cures Legislation. This month is the last chance for Senate Cures to pass […]
RareAction Network℠ Releases May/June State Policy Legislative Tracker
May 31, 2016
RareAction continues to make strides around the country for the 1 in 10 Americans with rare diseases. In this version of the State Policy Legislative Tracker, there is an increase […]
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